Cholestatic liver diseases (ChLD) resources for your practice
Download these helpful resources to support diagnosing and treating your patients with ChLD
Adult Hepatologist Flashcard
Learn the reasons why a PFIC diagnosis may be overlooked in some adult patients with progressive ChLD, and the importance of reassessing and diagnosing those patients.
Urgency To Treat Cholestatic Liver Disease Brochure
Use this educational resource to learn more about recognizing the key signals of progressive liver diseases, such as PFIC and ALGS, that may lead to liver failure and the need for transplant.
Advocacy and support groups
Advocacy and support groups can provide you and your patients with additional ChLD resources and information.
American Liver Foundation (ALF)
A national, voluntary, nonprofit organization dedicated to the prevention, treatment, and cure of hepatitis and other liver diseases through research, education, and advocacy.
Childhood Liver Disease Research Network (ChiLDReN)
Offers medical and patient advocacy support with clinical sites and research labs in the U.S.
ClinicalTrials.gov
Provides the public with information on clinical studies for a wide range of diseases and conditions, including PFIC.
National Organization for Rare Disorders (NORD)
A patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. It is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.
Progressive Familial Intrahepatic Cholestasis Advocacy and Resource Network (PFIC Network)
Aims to improve the lives of patients and families worldwide affected by PFIC.
Connect with a Representative
Representatives are here to answer any questions you may have or to schedule a visit.
ChLD=cholestatic liver diseases; HCP=healthcare professional.
